Hi everyone. I have an update on Aliza's health. She was supposed to be having surgery tomorrow, but there was a last minute setback. The doctors say she does not have enough skin on her scalp to allow them to replace her "bone flap" as planned. So now they say they need to stretch the skin. They will do this with two implants on the "good side" of her head (I think both side are pretty awesome, all things considered) that will be gradually filled with more saline over the course of a few months–they're not sure exactly how long it will take. She will have a surgery to put in the implants some time in the next 4-6 weeks. What a fucking bummer, especially as our hope was that putting the skull piece back on would help her aphasia and arm and leg problems immensely. Aliza is really struggling with these problems right now, so this is hugely frustrating to her and all of us who love her.
If you want to help out, please consider making a donation at alizabraintrust.org or call Aliza and let her know if you can help out with chores, etc.