8/8/11 Status Update – Talking

Aliza had brain surgery. The kind where a hot shot surgeon took off a piece of her skull and then sucked out a pesky pool of blood with a super high tech pipette. Yes, scary. Super scary. But damn, if it didn’t help. A lot. Less than 36 hours later, she was conversing with us, in complete sentences, one after another. Though it is still hard for her to find certain words or remember certain names. A 10 minute conversation totally knocks her out.

As we have learned over the last two weeks, recovery from brain trauma does not go in a straight line. We expect there will be ups and downs and we still don’t know what the real long term prognosis is. Even so, we have not seen this level of engagement in the previous 14 days and remain cautiously optimistic.

Today while recapping what had happened to her and about her surgery, she looked up and asked “I can’t ride a bike now?” “No, not now but hopefully at some point in the future. Though the docs said that you might get a metal helmet now before they fix up your skull.” “A metal helmet?” “Uh huh, to protect those big brains.” A smile forming on her face. “A metal helmet. Nice.”

She also wanted me to come back later in the day so that she could begin to thank the 740 of you who donated to the Brain Trust. I told her that might not be the best activity for her right now. So instead I promised to let you all know she that wants to thank each and every one of you herself.

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22 Responses to 8/8/11 Status Update – Talking

  1. Rachel Taylor says:

    Aliza,a metal head? HA!

  2. laura evonne says:

    thanks for the update! been thinking about you a bunch Aliza. your a super strong one!
    Take this time to relax and heal.

    peace
    Laura
    i’ve let jews and UU’s, and risd folks know to all send you good vibes!

  3. Sarah says:

    I’m so happy to read this — my eyes got a little teary. Much love, Aliza!

  4. Nick Atlas says:

    Fantastic and better than fantastic!

  5. Sabrina says:

    Thanks for keeping us updated on her progress. Thank you for all you’re doing for her, and constant love and hope in Aliza’s direction.

  6. Audrey says:

    Thank you for the updates. I’m keeping her in my thoughts.

  7. valerie says:

    namaste/always.

  8. Austin says:

    We love you, Aliza, and we love you, Aliza’s team. I look forward to your amazing heavy metal helmet, Aliza – Heywood’s KISS drag number is playing in my head right now! (I Was Made For Lovin’ You Baby)

  9. Em says:

    So thankful for hot shot brain surgeons. And so grateful to be able to be cautiously optimistic.

  10. Kip says:

    way to go, girl! (and hot shot surgeon!).

  11. Gina Sage says:

    Q: When they remove the scull do they keep the hair on the piece they take off? Sort of like turf.
    We love you Aliza, Jac and I talk about you every day and wish for you a speedy recovery.

  12. Dylan Cox says:

    This updated has left me elated, and cautiously optimistic as well. What a joy it must have been to have had such a wonderful exchange of words and communication yesterday. As always, that amount of love, whimsy well wishes and sweetness being sent your way is abundant.

    We love you!

  13. Ben M says:

    This update made me so happy! You can do it Aliza! Love you! When you can eat again, I’ll cook you food in some short shorts! Watch out!

  14. Anne C. says:

    I want to sign her metal helmet. Hang in there, Aliza. I think of you every day.

  15. Tobaron says:

    This post made me laugh and cry at the same time, the brain is so vast.
    Thank you for taking such good care of Aliza.
    I will be back in USA in the fall and ready to help in person.
    warm regards,
    TW

  16. Steve says:

    Man..this is Mar-vee News..
    But Please..do not yet- let her have flyers!!

  17. Chuck says:

    A metal helmet suits you, Aliza! You could have a dozen all specifically decorated for various events. Use them as flyers!

  18. Maura says:

    Glad to hear the good news! Continue to heal. 🙂

  19. Daunasia says:

    so glad for the good news… cautious optimism is crucial…
    sending good vibes and as much cash as I can spare!

    peace

  20. Leslie B rokaw says:

    Aliza, you have the warmest heart and the most generous spirit, and you have worked so hard and so tirelessly and so enthusiastically to build community for so many people, both friends and strangers. It is an amazing set of accomplishments and an inspirational body of work. And so it is only fitting that you are seeing the force and spirit of a community enthusiastic to give back to you. We love you and wish you great buckets of strength and patience in the coming days and weeks. This news of your surgery 8/7 and your easier access to language the next day is fantastic. More days like that! xo

  21. mel prest says:

    Good news– thank you for sharing the happy progress. We are holding you in our thoughts with love.
    xxxxoooo

  22. Lesli Turock says:

    What incredible news! My mom talks about you all the time and is keeping tabs on you from Dedham! Love Love Love to you in your new rockin’ metal helmet! XXOOO Lesli

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